The Jett Foundation’s mission is to extend and enrich the lives of individuals affected by a severe muscle disease called Duchenne Muscular Dystrophy (DMD). Their efforts have funded promising biomedical research and life-changing treatments for DMD.
DMD is a rare, genetic, neuromuscular condition that causes a loss of motor, pulmonary, and cardiac function, and ultimately, premature death. Children with DMD are born seemingly healthy and decline over time, typically losing their ability to walk around the age of 12 and succumbing to the disease in their early to mid-twenties.
Jordan Johnson was diagnosed with DMD in December 2017 at age 3 ½. Jordan is a creative and charismatic soon-to-be kindergartener, who loves sea creatures, music, and learning about the solar system. Jordan is a loving big brother to two younger siblings, Layla and Julian, and son of Jordan and Diana who refer to him as the heart of the family.