Our Check in For Charity for January/February, 2022 is CLOVES Syndrome Community, which was established in 2009 by a mother of a child who was diagnosed with this rare condition after realizing there was no network for support.
What is CLOVES? CLOVES stands for Congenital, Lipomatous, Overgrowth, Vascular Malformations, Epidermal Nevi and Spinal/Skeletal Anomalies and/or Scoliosis. CLOVES is caused by a gene mutation and is extremely rare. There is no cure for CLOVES and as of right now, and there is very little treatment.